Tuesday, June 24, 2008
Sunday, June 22, 2008
Wednesday, June 18, 2008
He was life-flighted to a bigger hospital about an hour away who in turn life-flighted him to Children's Primary in Salt Lake City, a state of the art hospital that could not only diagnose his mystery problem but could treat it.
Getting off the fixed-wing life-flight.
Hannah with Grayson.
All of the girls with Grayson.
Playing with stethoscopes.
Being at a hospital like Primary Children's, which specializes in unusual and rare diseases in children, was such an experience. I went in there a bit traumatized but holding it together, having a three month old son who was now stable and breathing, but with a then-unknown cause to his troubles. In the four days we were there I saw
-a four year old girl, my oldest daughter's age, pulling an oxygen tank behind her as if it was part of her body
-so many parents, siblings, and grandparents pulling little plastic wagons with children to weak to walk
-children obviously in the middle of cancer treatments
-a baby ward that was huge and full of babies in much worse condition than my little tyke
-parents that ranged from those that, as one nurse put it, "have to be told to leave the bedside of their kids and go to the bathroom" to parents that "have to be called and told that the doctor wants to talk to them about their child, so could you come in to the hospital" - so many different ways of dealing with sickness
-a six year old girl that stopped and talked to me about my son and asked all sorts of probing questions about his condition - questions that could only be asked by someone intimately familiar with doctors and tests and shots and hospital stays - her little brother (also named Grayson) lived at the hospital due to his problems
-so much kindness from everyone - janitors, nurses, doctors, life-flight EMTs, cafeteria workers - everyone in that hospital had a smile for my children and that hospital is *made* for children
Ainsley and the 'Fish Tank'.
-a cafeteria that was more like a restaurant in the quality of food it offered - we've missed that cafeteria since we left - it was nice not to feel like we were living on fast food
All in all, after being there a day, I wasn't thinking that what we were going through was so terribly awful by comparison after all. By the time we left I was fully cognizant of how lucky we were to be leaving so quickly and with such resolution in his case and wishing we had something similar close to where we lived so that I could volunteer there.
We go back in two weeks for some more tests and hopefully some resolution. I'm not looking forward to the poor kid getting poked *again* - he hated that worse than anything else.
After talking with the ambulance driver on our way from the fixed-wing life-flight (which landed at the airport) to the hospital, I now realize that even if we lived in the middle of Salt Lake City it would have taken us fifteen minutes at the least to get to the hospital. So country living works for me again.
Here are some random pictures of the girls during the trip:
To pass the time with the girls, Matt used the colorful gauze to make the girls look like 70s joggers.
Relaxing at home.
Thursday, June 5, 2008
Yesterday she asked "Was Jesus Mormon, mother?" I told her that Jesus was, by his very existence, Christian, but not Mormon. After I got to thinking about it, and about books I've read about Jesus as a person and about how the time he lived in shaped who he was, I have to wonder if he'd even classify himself as Christian today. Interesting.
She has decided that Jesus is a fairy (thanks to a picture in the Primary room). She's also wavering between thinking Jesus came back to life and thinking that's just a story. She likes the idea of someone beating death - death's a bit nerve-wracking for a four year old - but she can't wrap her mind around the fact that he came back looking like he did before he died. According to her, when you die you become a skeleton. He should look like a skeleton. A fairy skeleton.